Benefit 2011

The benefit we held on Saturday (Sept. 24) was a success! It ran smoothly and seemed like those in attendance were enjoying themselves. Although the large bounce house we anticipated didn't show up we had two smaller ones that kept the kids occupied while their parents were having a good time bidding on fabulous items. We had some serious bidding for the larger items...especially the gigantic Hess Basket! I wanted to share some wonderful pictures we took from that day. All the volunteers were wearing "Drew's Crew" T-shirts! Thank you to all of the sponsors who made that happen, especially Coast To Coast in Manlius who put our dream into action.

 Here is Marci, Angie and Rich!! I have been adopted into their wonderful family!! :) I don't know what I would have done without Marci. Her home became our "headquarters!" Every time I was ready to crawl into bed, my phone would ring and I would hear her positive, uplifting voice on the other end!

 Silly boys hanging out on the large chair that PartyCuse brought to the event! Thank you!

Although we were all EXHAUSTED after hosting the benefit we managed to get a picture of me, Alexis and my mom (Ann) before we all crashed!

I learned a lot from this experience. For me, it was part of my grieving process. I am not the type of person to sit around and do nothing. I have decided to dedicate my life to fighting for babies and children who have metabolic disorders and support families who go through similar trials. My goal is to raise $1 million dollars for research by the time it is my turn to leave this life. I know that might seem large...but I have my whole life to do it and amazing people to help me along the way.

It simply amazed me how generous people are. It was so difficult to walk into business, especially family owned/small companies, and ask for a donation. I know that the economy right now has impacted so many families and businesses yet they were so willing to help in any small way they could.

All together we had around 50 silent auction items and sold close to $2000 in raffle tickets. All the proceeds from selling food was donated by Ruddy's Pizzeria! We are happy to announce that the Drew Parke Memorial Trust is up to $8500!! We can now start the process of finding out more about the disorder that affected our little boy. Plus all information we gain from this, will also help other families.

It has been one month since Drew passed away. I miss him more everyday and my heart aches that I can't hold and cuddle him anymore. I find that the spark that used to propel me through life has a huge gap in the middle. We recently got the tiny hand print the nurse made for us after he passed away, I cherish it! His tiny fingers used to wrap around my fingers when I held him. I miss that.

Thank you all for helping me continue my fight for Drew. I know that his short life on this Earth changed my life in so many incredible ways. I love him so much and I know with a pure knowledge that I will see him again!