Our Goal

I am so excited to announce that the Memorial Trust set to help our family get genetic testing has reached it's first huge goal. I say first because the fight will never really be over...whether for our family or another one. We now have the needed $14,000 to get the genetic test through Ambry Genetics, with the hope that they will be able to pinpoint a genetic mutation that was likely to cause Drew's disorder. From there the road could be long if it is a mutation that has never been seen in a human before.

I owe this big feat to my husbands family. They embarked on the task to help us raise the final $5000...through a fundraiser in Utah! They did more than raise that...they raised a total of $6000! It truly brings tears to my eyes to think that individuals who live on the other side of this country would be that generous to our family.

Drew was the most beautiful and special little boy. When I held him, I felt a deep sense of peace and joy from being his mother. I have to admit that I frequently hogged him because it was so hard to put him down. The one person I shared him with openly was my husband, Robert. He is still so proud to be his father.

Thank you everyone....Aunts, Uncles, Nieces, Nephews....for making the sacrifice of time to raise money for our family. I know that Drew is proud of the family he was born into. We all are making him proud.