Appointment Date

I have a lot to share about what has been going on lately, but i couldn't wait to share this news. We have been waiting for weeks for an appointment with the genetics team to help us answer many of the questions we still have about Drew's disorder. We really are trying to figure out what gene causes the disorder to prevent future children in our family from having serious complications like Drew did. This knowledge will also help doctors and researchers know more about this incredibly rare disorder.
We have an appointment on November 30th, 2011 to discuss with the team our options to get more answers. Yes...I said options..plural. The genetic counselor was very positive about several different options including one very new way to test for genetic mutations. This was great news! I know it will be really hard to talk about everything that happened and relive it all but I think it is a big step in our grieving process...
I promise to post how the appointment goes and the information we get! Thanks to all my amazing friends and family we can actually pursue these options because the trust fund and your generous support. Thank you!!